tag:blogger.com,1999:blog-5799937829443177408.post4006105378617689430..comments2014-11-08T11:44:24.193-05:00Comments on Rooting for Ramsey: Tuesday MorningTesthttp://www.blogger.com/profile/09416766775019413586noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5799937829443177408.post-3646667956915787022011-01-18T15:22:47.565-05:002011-01-18T15:22:47.565-05:00Its amazing to me how much support is now availabl...Its amazing to me how much support is now available for families of CDH children. Your family is VERY blessed. I had my first undiagnosed CDH baby 9 yrs ago. He died at 25 days of age. My 2nd undiagnosed CDH son is now 7 and autistic. We had NO help or support with our sons. I pray that your Ramsey is stong and is home with his loving family soon! Sending prayers for your family from Wisconsin.<br />~Heidi~Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5799937829443177408.post-16533239972717488772011-01-18T14:26:07.150-05:002011-01-18T14:26:07.150-05:00Still waiting and praying...Still waiting and praying...Ardihttps://www.blogger.com/profile/13920412321052858256noreply@blogger.comtag:blogger.com,1999:blog-5799937829443177408.post-46056463809438457842011-01-18T10:43:17.690-05:002011-01-18T10:43:17.690-05:00Hi Lisa,
A similar thing happened with Jaxson in ...Hi Lisa,<br /><br />A similar thing happened with Jaxson in his first 24 hours - they were considering putting him on ECMO, but one of the Fellows decided to pull the chest tube up a little bit and then also put him on Nitric Oxide (I think that what it was, but it's been a while). Those two adjustments saved him from having to go on ECMO. <br /><br />Jax had his surgery on day of life 5 (also my birthday) and the Xray after the repair was very eye opening. We could see his right lung and it was pretty big and the there was a tiny sliver of a left lung and the rest was fluid. At his 2 year visit to CHOP, they took another Xray and both of his lungs were normal size! It was pretty amazing to us that his left lung grew so much in 2 years!<br /><br />Anyway, Ramsey will let the surgeons know when he's ready. It sounds like he's already doing that! A true fighter!<br /><br />SarahAnonymoushttps://www.blogger.com/profile/15790557240350659368noreply@blogger.comtag:blogger.com,1999:blog-5799937829443177408.post-88926985185577681382011-01-18T10:32:14.424-05:002011-01-18T10:32:14.424-05:00have just came across your blog, good luck in Rams...have just came across your blog, good luck in Ramsey's journey, he sounds like an amazing little fighter already xx<br />it's been a year for us since our CDH miracle came home, our NICU journey seems so long ago now, but yet i can remember everything like yesterday xx<br /><br />Hayley<br />mummy to our sunshine warrior Lewis<br />LCDH survivor 12/11/09Hayleyhttps://www.blogger.com/profile/04277825654537171485noreply@blogger.comtag:blogger.com,1999:blog-5799937829443177408.post-17870435059832873672011-01-18T10:26:20.577-05:002011-01-18T10:26:20.577-05:00Every bit of news is encouraging. May God and his ...Every bit of news is encouraging. May God and his guardian angel continue to watch over Ramsey.Anonymousnoreply@blogger.com