Magic in Every Breath

Often, we fail to appreciate the things we've never had to do without. 

Until Ramsey, I don't think I stopped to consider the significance of every breath we take. When I was 5 months pregnant with him, we vacationed in Disney. Though I was fearful he'd never take a single breath on his own, I made a promise to return with him in 3 years.  In September, we fulfilled that promise with a celebration of his life at Disney World. 

Even though I never wanted to be that family wearing matching shirts, I couldn't think of a better reason to do so.  So, I designed T's for all the guys and girls.  The ladies and kids shirts had a silhouette of Ramsey holding a Mickey balloon and said "Magic in Every Breath". The men's shirts were simple stated, "Life is a Gift".  

It was a celebration worth repeating!!

Our group in front of Animal kingdom's "Tree of Life"

Our TinySuperhero

There's an awesome woman named Robyn who, with the help of her family, started TinySuperheroes. On her website Robyn states, "TinySuperheroes seeks to empower our little ones — one cape at a time. We donate capes to Extraordinary TinySuperheroes who exemplify strength and determination as they overcome great adversity. Once these Extraordinary TinySuperheroes are comfortable in their new capes, we feature them on our blog, in hopes of giving them a voice, their illness or disability a face, and the world the opportunity to stretch."

Visit the TinySuperheroes blog to read Robyn's take on our little hero. It's great to read his story from another's perspective and even better to raise awareness of CDH.