Wednesday, November 3, 2010

Spreading the Word

Since Ramsey's diagnosis, I've become aware of the need for CDH awareness. Most people have never heard of it, yet it happens as often as spina bifida, cystic fibrosis and congenital muscular dystrophy. I pray that some day there may be a voice powerful enough to inform the masses about CDH, and teams of surgeons capable to increase each child's chance of survival.

In the meantime, I am doing my best to spread the word about Ramsey. I hope to create awareness, and most importantly, to increase the number of prayers that he has. I want to thank Breath of Hope for providing turquoise awareness ribbons and bracelets in order to do just that! We have continued to make our own ribbons, as well as prayer cards to pass out to anyone who wants to know more about CDH and to follow Ramsey's story on this blog.  Since launching the blog in September, there have been nearly 1,500 page views!   I get so excited as the number increases knowing people are following his story, and the number of prayers for him are increasing.

Help us "Root for Ramsey" by passing out prayer cards.  Download the cards here.

Shown are samples of the prayer cards, ribbons and a special necklace I wear everyday. The charm features Ramsey's name, a turquoise bead and an awareness ribbon. (Thanks to CT Jewelry Design at Etsy for helping to create the beautiful necklace!)

Thanks to everyone who follows the blog and to those who have personally reached out to us! We've received emails, phone calls, cards and gifts from friends, family, churches, and even strangers. As difficult as the road ahead may be, we are overwhelmed by the support we have been given and are thankful to be surrounded by so much encouragement, love, and prayers. They say CDH is a roller coaster ride and there is no rhyme or reason as to which children survive. I believe the survivors are those who are backed by faith and prayers...thank God Ramsey's supporters have so much of it!


  1. Lisa - thanks for the update and what a beautiful charm/necklace. I'm continuing to check in to the blog and pray for you, Dennis, Reed and Ramsey! Thinking of you all :)


  2. Lisa I work with Mary R and she shared your story with us. Ramsey is LUCKY to have such a supportive network! I pray for Ramsey's positive progression and for your family to have the strength to get through these trying times. God Bless you all :-)