With the guidance of the nurse, I bathed and weighed Ramsey last night. I also was able to hold him while she changed his bedding. He wasn't quite as clean as I wanted him, but I didn't want to scrub too hard! His oxygen was turned up during the process so he wouldn't have to work so hard. Afterwards, his heart rate stayed pretty high, around 180. We let him fight it a little, so he can learn how to recover on his own without being dependent on sedatives, etc. for help.
He continued to have a bit of a rough night, so they took that as a sign that we've been pushing him a little too hard in the last few days. The nurse stressed that she wasn't worried...she said she is more worried about me because she knows that I will blame the bath I gave him on the setback. They decided to turn up the oxygen to 40, which is still a low setting. They also turned his morphine back up a bit. They gave him some saline, believing that he might have been too dry, which contributes to a higher heart rate.
They just finished giving him some blood to help with his oxygen. They will also give him lasiks to counteract any fluid retention caused by the blood. He may need to start on Methadone to help as he weans off of all the medications he's become so accustomed to. We're not sure yet if they will lower the nitric oxide today or leave it as is until tomorrow.
I wonder just how nervous we will be when we finally take Ramsey home. It is important as he is cared for to pay close attention to his color, especially on his lips. Since he has so much support while in the hospital, that would obviously indicate any signs of distress, but when we take him home, we won't have that to rely on. That's a bit unnerving, but I hope as time goes on we'll have less fear of such a setback and a strong mother's (and father's) intuition if there ever is a problem.