Monday - Day 47

Ramsey had to remain at 45 ml today for his bottle feeding. He had seemed to tire so much from the slow-flow nipple so we tried the regular flow but it was a bit too fast for him. Ultimately, he left 15 ml in his first bottle. During his 2nd bottle, he cried so much he only drank 20 ml. This continued until his 9 pm feeding when he finally drank the whole bottle! I think he was dealing with a few problems today that just made him not want to eat; he has thrush, he was gassy and he had reflux.

I hope this isn't a sign of things to come! 45 ml is right around 1.5 ounces and I was told that this is the point where problems can arise. It might be good that he knows when to quit, even if it's sooner than what we want him to so that he doesn't aspirate. So much for my 4 day countdown to 65 ml! I guess this is why you never know just how long it will take till discharge.

We will go home with a monitor which will be a great relief to us. At least then we will know if there are any problems. They will also do a car seat test to see how well he does in the seated position for the drive home. When his oxygen dropped the other night, he was actually in his bouncy seat.

Ramsey had his weekly bloodwork early this morning and the billirubin is finally lower! I need to see how far we have to go to be in the normal range but I am glad that we are finally heading in the right direction.

The Alpha-1 antitrypsin test was just outside of the normal range on the higher end of the scale. I haven't discussed it yet with intestinal care, but I've been told that if there were a problem, it would have been on the lower range. So it appears we don't need to be concerned about that.