|Ramsey in his new crib|
Ramsey was really uncomfortable last night. We attributed it to withdrawal. He just looked so miserable, and he couldn't sleep. He only seemed comforted when the binky was in his mouth. He was given a little sedative to relax him, but even that wasn't helping. Around 4AM, he threw up again. They checked his tubes to make sure they were positioned properly...they thought maybe the one they put in yesterday needed adjusted (The one in his nose, that they put directly into his intestines, hoping to prevent the vomiting). It was still positioned properly. Amidst all of this, they gave him some morphine to relax him. He continued to vomit, and he threw up the tube that was in his mouth. (While the tube was out, they heard his cries for the first time; the tubes had kept him silent until then). They re-intubated him. They have determined that he is suffering from some major reflux. They will start him on Pepcid to treat it, and will continue his feeds once the meds take effect.
Reflux is common with CDH babies, since their intestines need some help to get working. They will start him on a small dose of Pepcid and increase as needed. I hope and pray that it helps him. I hate to see him in pain, and the morphine apparently wasn't much help. If the meds don't help the issue, they would need to insert a G-tube (feeding tube directly into his stomach).
Amidst the feeding setbacks, one plus is that his CO2 was better than it has been in days. This allowed them to lower the vent to 26. I am hoping that he can be extubated soon. He may need steroids in order to beef up his lungs in order to to do so. The tube in his mouth is affecting his palate, which could affect how well he takes a bottle, as well as cause issues when his teeth come in.
Praying that the reflux can be treated, that he can be extubated soon, and that he rests well today!